Resources
Architecture
Law
- Bazelon Center for Mental Health Law
- Disability Rights Advocates (DRA)
- Disability Rights Education and Defense Fund (DREDF)
- Disability Rights Legal Center
- Law Office of Lainey Feingold
- Goldstein, Demchak, Baller, Borgen & Dardarian (GDBBD)
- Greater Boston Legal Services (GBLS)
- National Association of the Deaf
- National Disability Rights Network
- New York Lawyers for the Public Interest (NYLPI)
- United States Department of Justice
- United States Access Board
Health and Disability
- Center for Disability Issues and the Health Professions
- American Association on Health and Disability
- Centers for Disease Control and Prevention — Disability and Health Team
- US Department of Health and Human Services — Office on Disability
- California Disability Health Coalition
Publications
Healthcare Access
- Breaking Down Barriers, Breaking the Silence: Making Health Care Accessible to Women with Disabilities
Independence Care System and New York Lawyers for the Public Interest
October 24, 2012- Healthcare Stories
Disability Rights Education and Defense Fund- DOJ guidance on access to medical care for individuals with mobility disabilities
- Removing Barriers to Health Care: A Guide for Health Professionals
- Accessible Examination Tables, Chairs, and Weight Scales
- Providing Information in Alternative Formats
- “Universal Design for Health Care Facilities“: Addressing Safety, Access to Care for a Diverse Patient Population
Environment of Care News
Joint Commission on Accreditation of Healthcare Organizations
January 2009- “Access to Health Care for People with Disabilities”
Ethics Matters, A Publication of the Donnelley Family
Disability Ethics Program
February 2009
Improving Clinical Care
- “Components of a Model System of Care for People with Developmental Disabilities”
- “Improving Health Care for People with Developmental Disabilities: Cultural Competencies for Providers and Systems”
- A Blind Spot in the System: Health Care for People with Developmental Disabilities
Harder and Company Community Research
September 2008
National Reports
- The Current State of Healthcare for People with Disabilities
The National Council on Disability, 2009- The Future of Disability in America
The Institute of Medicine of the National Academies of Science- The Surgeon General’s Call to Action to Improve the Health and Wellness of Person’s with Disabilities
- Healthy People 2010 - Objectives for People with Disabilities
Research with Links
- Disability and Health in the United States, 2001–2005
B. Altman and A. Bernstein
National Center for Health Statistics, 2008- Americans with Disabilities: 2005
Matthew Brault
Current Population Reports US Census Bureau, 2008- Health Care for Americans with Disabilities
Henry J. Kaiser Family Foundation, 2004- Understanding the Health Care Needs and Experiences of People with Disabilities:
Findings from a 2003 Survey
Henry J. Kaiser Family Foundation- It Takes More than Ramps to Solve the Healthcare Crisis for People with Disabilities
J. Panko Reis, M.L. Breslin, L. I. Iezzoni, K. Kirscher
Rehabilitation Institute of Chicago, 2004
Journal Articles
- Tara Lagu et al., “Access to Subspecialty Care for Patients With Mobility Impairment: A Survey'” Annals of Internal Medicine 158, no. 6 (March 2013), pp. 441-446. Click here for a video summarizing the research findings.
- Lisa I. Iezzoni, “Ups and Downs of Improving Physical Examination Access for Patients and Physicians,” Annals of Internal Medicine 158, no. 6 (March 2013), pp. 491-492.
- M. T. Neri and T. Kroll, “Understanding the Consequences of Access Barriers to Health Care: Experiences of Adults with Disabilities,” Disability and Rehabilitation 25, no. 2 (2003), pp. 85-96.
- Mari-Lynn Drainoni et al., “Cross-Disability Experiences of Barriers of Health-Care Access,” Journal of Disability Policy Studies 17, no. 2 (2006).
- Gloria L. Krahn, Laura Hammond, and Anne Turner, “A Cascade of Disparities: Health and Health Care Access for People with Intellectual Disabilities,” Mental Retardation and Developmental Disabilities Research Reviews 12, no. 1 (2006), pp. 70-82.
- Gloria L. Krahn and Charles E. Drumm, “Translating Policy Principles into Practice to Improve Health Care Access for Adults with Intellectual Disabilities: A Research Review of the Past Decade,” Mental Retardation and Developmental Disabilities Research Reviews 13 (2007), pp. 160-168.
- Susan L. Parish and M. Jennifer Ellison-Martin, “Health-Care Access of Women Medicaid Recipients: Evidence of Disability-based Disparities,” Journal of Disability Policy Studies 18.2 (2007): 109-116.
- Lisa M. Harmer, “Health Care Delivery and Deaf People: Practice, Problems and Recommendations for Change,” Journal of Deaf Studies and Deaf Education 4, no. 2 (1999), pp. 74-110.
- G. Steinberg et al., “Health Care System Accessibility: Experiences and Perceptions of Deaf People,” Journal of General Internal Medicine 3 (2006), pp. 260-266.
- Bonnie L. O’Day, Mary Killeen, and Lisa I. Iezzoni, “Improving Health Care Experiences of Persons Who Are Blind or Have Low Vision: Suggestions From Focus Groups,” American Journal of Medical Quality 19 (2004).