The Barrier Free Health Care Initiative

Resources

Architecture

• Evan Terry Associates

• Equipment for Health Care Access

 

Law

• Bazelon Center for Mental Health Law

• Disability Rights Advocates (DRA)

• Disability Rights Education and Defense Fund (DREDF)

• Disability Rights Legal Center

• Law Office of Lainey Feingold

• Goldstein, Demchak, Baller, Borgen & Dardarian (GDBBD)

• Greater Boston Legal Services (GBLS)

• National Association of the Deaf

• National Disability Rights Network

• United States Department of Justice

• United States Access Board

 

Health and Disability

• Center for Disability Issues and the Health Professions

• American Association on Health and Disability

• Centers for Disease Control and Prevention — Disability and Health Team

• US Department of Health and Human Services — Office on Disability

• California Disability Health Coalition

 

Publications

Healthcare Access

• Removing Barriers to Health Care: A Guide for Health Professionals

• Accessible Examination Tables, Chairs, and Weight Scales

• Providing Information in Alternative Formats

• “Universal Design for Health Care Facilities“: Addressing Safety, Access to Care for a Diverse Patient Population
  Environment of Care News
  Joint Commission on Accreditation of Healthcare Organizations
  January 2009

• “Access to Health Care for People with Disabilities”
  Ethics Matters, A Publication of the Donnelley Family
  Disability Ethics Program
  February 2009

 

Improving Clinical Care

• “Components of a Model System of Care for People with Developmental Disabilities”

• “Improving Health Care for People with Developmental Disabilities: Cultural Competencies for Providers and Systems”

• A Blind Spot in the System: Health Care for People with Developmental Disabilities
  Harder and Company Community Research
  September 2008

 

National Reports

• The Future of Disability in America
  The Institute of Medicine of the National Academies of Science

• The Surgeon General’s Call to Action to Improve the Health and Wellness of Person’s with Disabilities

• Healthy People 2010 – Objectives for People with Disabilities

 

Research with Links

• Disability and Health in the United States, 2001–2005
  B. Altman and A. Bernstein
  National Center for Health Statistics, 2008

• Americans with Disabilities: 2005
  Matthew Brault
  Current Population Reports US Census Bureau, 2008

• Health Care for Americans with Disabilities
  Henry J. Kaiser Family Foundation, 2004

• Understanding the Health Care Needs and Experiences of People with Disabilities:
  Findings from a 2003 Survey
  Henry J. Kaiser Family Foundation

• It Takes More than Ramps to Solve the Healthcare Crisis for People with Disabilities
  J. Panko Reis, M.L. Breslin, L. I. Iezzoni, K. Kirscher
  Rehabilitation Institute of Chicago, 2004

 

Journal Articles

• M. T. Neri and T. Kroll, “Understanding the Consequences of Access Barriers to Health Care: Experiences of Adults with Disabilities,” Disability and Rehabilitation, 25, no. 2 (2003), pp. 85-96.

• Mari-Lynn Drainoni et al., “Cross-Disability Experiences of Barriers of Health-Care Access,” Journal of Disability Policy Studies 17, no. 2 (2006).

• Gloria L. Krahn, Laura Hammond, and Anne Turner, “A Cascade of Disparities: Health and Health Care Access for People with Intellectual Disabilities,” Mental Retardation and Developmental Disabilities Research Reviews 12, no. 1 (2006), pp. 70-82.

• Gloria L. Krahn and Charles E. Drumm, “Translating Policy Principles into Practice to Improve Health Care Access for Adults with Intellectual Disabilities: A Research Review of the Past Decade,” Mental Retardation and Developmental Disabilities Research Reviews 13 (2007), pp. 160-168.

• Susan L. Parish and M. Jennifer Ellison-Martin, “Health-Care Access of Women Medicaid Recipients: Evidence of Disability-based Disparities,” Journal of Disability Policy Studies 18.2 (2007): 109-116.

• Lisa M. Harmer, “Health Care Delivery and Deaf People: Practice, Problems and Recommendations for Change,” Journal of Deaf Studies and Deaf Education 4, no. 2 (1999), pp. 74-110.

• G. Steinberg et al., “Health Care System Accessibility: Experiences and Perceptions of Deaf People,” Journal of General Internal Medicine 3 (2006), pp. 260-266.

• Bonnie L. O’Day, Mary Killeen, and Lisa I. Iezzoni, “Improving Health Care Experiences of Persons Who Are Blind or Have Low Vision: Suggestions From Focus Groups,” American Journal of Medical Quality 19 (2004).